Donate securely via PayPal 100% of the funds we raise go towards Research and Awareness of Sanfilippo Syndrome. ... Learn more
The Abby Grace Foundation remains HOPEFUL for a CURE for Sanfilippo Syndrome. There is currently no cure or even a treatment for this always fatal disease.
There is exciting research on the horizon for children born with Sanfilippo Syndrome. A Clinical Trial treating a small number of children began at Nationwide Children’s Hospital in Ohio in the spring of 2016. The Abby Grace Foundation, along with many other family-formed foundations, helped support the funding of the Gene Therapy Clinical Trial.
While we must wait for results of the trial, we overwhelmingly feel a sense of urgency to support other potential research. We will continue fighting to cure Sanfilippo Syndrome for our daughter Abby Grace and the many other children born with this devastating disease.
Donate securely via PayPal 100% of the funds we raise go towards Research and Awareness of Sanfilippo Syndrome. ... Learn more
The Abby Grace Foundation remains HOPEFUL for a CURE. There is exciting research on the horizon for children affected ... Learn more
Meet Abby Grace Abby is 16 years old and is a sophomore in high school. She developed normally until around age 5, ... Learn more
100% of the funds we raise go towards the Research and Awareness of Sanfilippo Syndrome
The FDA has granted Abeona Therapeutics Fast Track status to the Gene Therapy trial to treat Sanfilippo Syndrome Type IIIA. ... Learn more
Exciting 30-day trial data has been released by Abeona Therapeutics. Highlights include Gene Therapy has been well-tolerated in low-dose Cohort of ... Learn more
Abby Grace Foundation
PO Box 1023
Dallas, NC 28034
Email Us
980-285-2210